Charlie Gard Case Back Before UK High Court

Michele Moreno
July 11, 2017

The parents of terminally ill 11-month-old Charlie Gard said overnight their son "deserves a chance" to be taken to the U.S. for an experimental treatment that could improve his condition.

Chris Gard and Connie Yates want 11-month-old Charlie, who suffers from a rare genetic condition and has brain damage, to undergo a therapy trial in America.

Charlie is in intensive care at Great Ormond Street hospital in London, the leading children's hospital in the UK.

A boy named Arturito Estopinan in Baltimore was the first child to be given deoxynucleotide monophosphate, an experimental treatment that significantly extended the life of mice with the same condition as Arturito, known as TK2-related mitochondrial depletion syndrome.

The hospital's decision to go back into the courtroom came after two worldwide healthcare facilities and their researchers contacted them to say they have "fresh evidence about their proposed experimental treatment". This past March doctors told his parents that there was nothing more they could do.

Ms Gollop told the court: "The hospital has been trying to do what is best for Charlie and his parents", and that as Charlie's parents had suggested GOSH medics were not doing so, had contacted the clinic and others to see if they were prepared to look after Charlie.

"We're not saying Great Ormond Street is a bad hospital but they don't have a specialist for his particular condition". Two congressmen have proposed giving the family USA residency and the internet has raised $1.7 million to help.

"Two global hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment", a hospital spokesman said, according to the BBC.

Mr Justice Francis, who in April ruled in favour of Great Ormond Street doctors and decided Charlie should be allowed to "die with dignity", oversaw a preliminary hearing in the latest round of litigation on Monday.

"Our bill will support Charlie's parents' right to choose what is best for their son, by making Charlie a lawful permanent resident in the U.S.in order for him to receive treatments that could save his life", they said. If you bring new evidence to me and I consider that evidence changes the situation.

Connie Yates, left, and Chris Gard, parents of terminally-ill 10-month-old Charlie Gard, pose with a petition of signatures supporting their case, July 9, 2017.

The treatment proposed for Charlie is still an "investigational drug", which means it hasn't gone through the formal approval process normally required by U.S. Food and Drug Administration.

"I couldn't sit there and watch him in pain and suffering, I promise you I wouldn't", she said in an emotional interview with BBC Breakfast, adding: "I think parents know when their children are ready to go and they've given up and Charlie is still fighting". He stressed that while the therapy was a treatment, not a cure, his son was "getting stronger every day".

Thanking supporters, Mr Gard said: "Let's get Charlie the treatment he needs".

Other reports by Insurance News

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